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Sondra D, Parkin DM, Liu B, et al. Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit. Lyon (FR): International Agency for Research on Cancer; 2025. (IARC Technical Report, No. 49.)

Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit.

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IARC Technical Report, No. 49.

Sondra D, Parkin DM, Liu B, et al.

Lyon (FR):International Agency for Research on Cancer; 2025.

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References

1.: Secretariat of the Pacific Community (2002). Regional framework for the protection of traditional knowledge and expressions of culture. Noumea, New Caledonia, France: Secretariat of the Pacific Community, Pacific Islands Forum Secretariat, and UNESCO Pacific Regional Office. Available from:https://library.sprep.org/sites/default/files/102.pdf.
2.: BrayF, ZnaorA, CuevaP, KorirA, SwaminathanR, UllrichA, et al. (2014). Planning and developing population-based cancer registration in low- and middle-income settings (IARC Technical Publication No. 43). Lyon, France: International Agency for Research on Cancer. Available from:https://publications.iarc.who.int/370. [PubMed: 33502836]
3.: Legislation Design and Advisory Committee (2021). Legislation guidelines: 2021 edition. Early design issues. 3. How new legislation relates to the existing law. Wellington, New Zealand: Legislation Design and Advisory Committee. Available from:https://ldac.org.nz/guidelines/legislation-guidelines-2021-edition/early-design-issues-2/chapter-3.
4.: Legislation Design and Advisory Committee (2021). Legislation guidelines: 2021 edition. Early design issues. 2. Defining the policy objective and purpose of proposed legislation. Wellington, New Zealand: Legislation Design and Advisory Committee. Available from:https://www.ldac.org.nz/guidelines/legislation-guidelines-2021-edition/early-design-issues-2/chapter-2.
5.: South African Government (2011). National Health Act, 2003 (Act No. 61 of 2003). Regulations Relating to Cancer Registration. Republic of South Africa. 26 April 2011. Government Gazette No. 34248, Vol. 550 No. 9527. Available from:https://www.nicd.ac.za/wp-content/uploads/2020/02/Cancer-Registration-Regulation-380-of-National-Health-Act-no-61-of-2003.pdf.
6.: New Zealand Law Commission (1996). Report 35. Legislation manual: structure and style – The structure of legislation. Wellington, New Zealand: New Zealand Law Commission. Available from:https://www.lawcom.govt.nz/assets/Publications/Reports/NZLC-R35.pdf.
7.: Government of the Republic of Korea (2024). Cancer Control Act. Enforcement Date 20 September 2024. Act No. 20379, 19 March 2024, Partial Amendment. Available from:https://www.law.go.kr/LSW/eng/engLsSc.do?menuId=2&section=lawNm&query=Cancer+Control+Act+Act&x=33&y=26#liBgcolor0.
8.: European Network of Cancer Registries and International Agency for Research on Cancer (2011). Guidelines on confidentiality and ethics for population-based cancer registration and linked activities in Europe. Available from:https://www.encr.eu/sites/default/files/pdf/ENCR_Eurocouse_GuidelinesConfidentialityEthics.pdf.
9.: Government of Singapore (2007). National Registry of Diseases Act 2007. Act 56 of 2007. Available from:https://sso.agc.gov.sg/Act/NRDA2007.
10.: International Association of Cancer Registries and International Agency for Research on Cancer (2004). Guidelines on confidentiality for population-based cancer registration. Internal Report No. 2004/03. Available from:https://gicr.iarc.who.int/static/public/docs/Confidentiality%20IACR-IARC%20(Tech%20Rep%202004-3).pdf.
11.: African Cancer Registry Network (2024). AFCRN standard procedure manual for population-based cancer registries in sub-Saharan Africa (version 5). Available from:https://afcrn.org/index.php/resources2/53-standard-procedure-manual/131-sop.
12.: Health and Disability Commissioner (2011). Improvements to the New Zealand Cancer Registry. Auckland, New Zealand: Health and Disability Commissioner. Available from:https://www.hdc.org.nz/our-work/submissions/improvements-to-the-new-zealand-cancer-registry/.
13.: Government of the Marshall Islands (2009). Cancer Registry Act 2009. Available from:https://www.paclii.org/cgi-bin/sinodisp/mh/legis/num_act/cra2009172/cra2009172.html?stem=&synonyms=&query=%22cancer%20registry%22.

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Sondra D, Parkin DM, Liu B, et al. Developing a Legal Framework for Population-Based Cancer Registries: A Toolkit. Lyon (FR): International Agency for Research on Cancer; 2025. (IARC Technical Report, No. 49.) References.
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