From Puzzle to Progress: How Engaging With Neurodiversity Can Improve Cognitive Science.Marie A. R. Manalili,Amy Pearson,Justin Sulik,Louise Creechan,Mahmoud Elsherif,Inika Murkumbi,Flavio Azevedo,Kathryn L. Bonnen,Judy S. Kim,Konrad Kording,Julie J. Lee,Manifold Obscura,Steven K. Kapp,Jan P. Röer &Talia Morstead -2023 -Cognitive Science 47 (2):e13255.detailsIn cognitive science, there is a tacit norm that phenomena such as cultural variation or synaesthesia are worthy examples of cognitive diversity that contribute to a better understanding of cognition, but that other forms of cognitive diversity (e.g., autism, attention deficit hyperactivity disorder/ADHD, and dyslexia) are primarily interesting only as examples of deficit, dysfunction, or impairment. This status quo is dehumanizing and holds back much-needed research. In contrast, the neurodiversity paradigm argues that such experiences are not necessarily deficits but rather (...) are natural reflections of biodiversity. Here, we propose that neurodiversity is an important topic for future research in cognitive science. We discuss why cognitive science has thus far failed to engage with neurodiversity, why this gap presents both ethical and scientific challenges for the field, and, crucially, why cognitive science will produce better theories of human cognition if the field engages with neurodiversity in the same way that it values other forms of cognitive diversity. Doing so will not only empower marginalized researchers but will also present an opportunity for cognitive science to benefit from the unique contributions of neurodivergent researchers and communities. (shrink)
Arguments for and against Germline Intervention: A Critical Review of Ronald Green’s Babies by Design.Marvin J. H. Lee &Sophia Lozowski -2017 -Journal of Healthcare Ethics and Administration 3 (1).detailsIt seems certain that one day we will allow the genetic technology which will enhance our offspring. A highly effective new tool, called CRISPR, which allows for carving out genes, is already being used to edit the genomes of animals. In July 2017, the FDA legalized that germline drugs for therapeutic purposes could be sold in the market. It is a high time, now, that we need engage in discussions about the ethics of germline intervention. To contribute to the discussion (...) by showing our thought and to educate the public, we write this paper. (shrink)
Patients' Knowledge of Key Messaging in Drug Safety Communications for Zolpidem and Eszopiclone: A National Survey.Aaron S. Kesselheim,Michael S. Sinha,Paula Rausch,Zhigang Lu,Frazer A. Tessema,Brian M. Lappin,Esther H. Zhou,Gerald J. Dal Pan,Lee Zwanziger,Amy Ramanadham,Anita Loughlin,Cheryl Enger,Jerry Avorn &Eric G. Campbell -2019 -Journal of Law, Medicine and Ethics 47 (3):430-441.detailsDrug Safety Communications are used by the Food and Drug Administration to inform health care providers, patients, caregivers, and the general public about safety issues related to FDA-approved drugs. To assess patient knowledge of the messaging contained in DSCs related to the sleep aids zolpidem and eszopiclone, we conducted a large, cross-sectional patient survey of 1,982 commercially insured patients selected by stratified random sampling from the Optum Research Database who had filled at least two prescriptions for either zolpidem or eszopiclone (...) between July 1, 2012 and June 30, 2013. Among the 594 respondents, two-thirds reported hearing generally about drug safety information prior to starting a new drug, with the remaining one-third “rarely” or “never” hearing such information. Providers and pharmacists were primary sources of drug safety information. Two-thirds of zolpidem users and half of eszopiclone users reported having heard about the related DSC messages, ability to accurately identify the major factual messages was limited. Respondents reacted to new drug safety information about their sleep aids by reporting that they would want to learn about alternative ways to help them sleep and seek out more information about the safety of their specific sleeping pill. Opportunities may exist for the FDA to work with providers and pharmacies to help ensure the DSC information is more widely received and is more fully understood by those taking the affected medications. (shrink)
Farmer’s Response to Societal Concerns About Farm Animal Welfare: The Case of Mulesing. [REVIEW]Alexandra E. D. Wells,Joanne Sneddon,Julie A. Lee &Dominique Blache -2011 -Journal of Agricultural and Environmental Ethics 24 (6):645-658.detailsThe study explored the motivations behind Australian wool producers’ intentions regarding mulesing; a surgical procedure that will be voluntarily phased out after 2010, following retailer boycotts led by People for the Ethical Treatment of Animals. Telephone interviews were conducted with 22 West Australian wool producers and consultants to elicit their behavioral, normative and control beliefs about mulesing and alternative methods of breech strike prevention. Results indicate that approximately half the interviewees intend to continue mulesing, despite attitudes toward the act of (...) mulesing being quite negative. This indicates that attitudes alone are unlikely to be good predictors of this goal directed behavior. Most respondents believed mulesing was more effective and involved less cost, time, and effort than the currently available alternatives to prevent breech strike. Further, they felt relatively little social pressure, as they believed few consumers were concerned about mulesing. However, they noted that if consumer sentiment changed they would likely change their practices. Thus, attitudes are likely to be only one of several factors influencing intentions to change farm practices to address societal concerns about animal welfare. Further, mulesing appears to be goal - directed behavior , suggesting that other factors depicted by the Model of Goal-directed Behavior (MGB; Perugini and Bagozzi In: Br J Soc Psychol, 40: 79–98, 2001 ) may be worth exploring in this context. Finally, these results provide insight into how policy makers may influence farmers to change practices in response to societal pressure for improving farm animal welfare. (shrink)
Praxiologies and the Philosophy of Economics.J. Lee Auspitz,Wojciech W. Gasparski,Marek K. Mlicki &Klemens Szaniawski (eds.) -1992 - Transaction Publishers.detailsThis breakthrough volume integrates European, British, and American scholarship in advanced areas of philosophy and decision theory. Contributions cover a broad area of economics--from criticism of institutional economics to examination of the role of induction in economic forecasting.
No categories
The Influence of Love of Money and Religiosity on Ethical Decision-Making in Marketing.Anusorn Singhapakdi,Scott J. Vitell,Dong-Jin Lee,Amiee Mellon Nisius &Grace B. Yu -2013 -Journal of Business Ethics 114 (1):183-191.detailsThe impact of “love of money” on different aspects of consumers’ ethical beliefs has been investigated by previous research. In this study we investigate the potential impact of “love of money” on a manager’s ethical decision-making in marketing. Another objective of the current study is to investigate the potential impacts of extrinsic and intrinsic religiosity on ethical marketing decision-making. We also include ethical judgments as an element of ethical decision-making. We found “love of money”, both dimensions of religiosity, and ethical (...) judgment to have significant impacts on ethical intentions in a marketing situation. In addition to providing an important contribution to the business ethics literature, the findings also have important managerial implications. (shrink)
Race on Campus: Debunking Myths with Data.Julie J. Park -2018 - Harvard Education Press.details_2020 Critics' Choice Book Award, American Educational Studies Association (AESA) In _Race on Campus_,Julie J. Park argues that there are surprisingly pervasive and stubborn myths about diversity on college and university campuses, and that these myths obscure the notable significance and admirable effects that diversity has had on campus life. _ Based on her analysis of extensive research and data about contemporary students and campuses, Park counters these myths and explores their problematic origins. Among the major myths that (...) she addresses are charges of pervasive self-segregation, arguments that affirmative action in college admissions has run its course and become counterproductive, related arguments that Asian Americans are poorly served by affirmative action policies, and suggestions that programs and policies meant to promote diversity have failed to address class-based disadvantages. In the course of responding to these myths, Park presents a far more positive and nuanced portrait of diversity and its place on American college campuses. At a time when diversity has become a central theme and goal of colleges and universities throughout the United States, _Race on Campus _offers a contemporary, research-based exploration of racial dynamics on today’s college campuses. (shrink)
No categories
Future sacred: the connected creativity of nature.Julie J. Morley -2019 - Rochester, Vermont: Park Street Press.detailsReveals how our survival depends on embracing complexity consciousness and relating to nature and all life as sacred.
A theory on causal factors in the origin of life.J. Lee Kavanau -1945 -Philosophy of Science 12 (3):190-193.detailsIn this paper a theory relating to the causal factors operative in the origin of living systems is presented.Let us consider living forms as material systems exhibiting, in addition to those properties held in common with all matter, systemic properties of a specific nature. If, then, the matter of the earth is classified from this standpoint, it is found that these systems are distributed only over the surface of the earth or in a shallow upper layer. This fact indicates that (...) the special properties of these systems are related in some manner to factors introduced at the surface and not operative elsewhere. (shrink)
Alethic Openness and the Growing Block Theory of Time.Batoul Hodroj,Andrew J. Latham,Jordan Lee-Tory &Kristie Miller -2022 -The Philosophical Quarterly 73 (2):532-556.detailsWhatever its ultimate philosophical merits, it is often thought that the growing block theory presents an intuitive picture of reality that accords well with our pre-reflective or folk view of time, and of the past, present, and future. This is partly motivated by the idea that we find it intuitive that, in some sense, the future is open and the past closed, and that the growing block theory is particularly well suited to accommodate this being so. In this paper, we (...) empirically investigate three claims. First, that people's intuitive or pre-reflective sense that the future is open is at least partly captured by there being truth-gaps for future contingents: what we call alethic openness. Second, that people, perhaps tacitly, believe that the fact that the future is alethically open is a reason to endorse the growing block theory; and third, that part of what explains why people tend to naively represent our world as a growing block is that they represent the future as alethically open. We found evidence in support of the first two claims. We consider the implications of these findings for several debates in the philosophy of time. (shrink)
The Temporal Stage Fallacy: A novel Statistical Fallacy in the medical literature. [REVIEW]David Shier &J. Lee Tilson -2005 -Medicine, Health Care and Philosophy 9 (2):243-247.detailsCelebrated for disproving the traditional view that lack of oxygen at birth (perinatal asphyxia) contributes significantly to cerebral palsy, a 1986 New England Journal of Medicine article by Karin Nelson and Jonas Ellenberg engineered a new consensus in the medical community: that lack of oxygen at birth rarely causes cerebral palsy. We demonstrate that the article's central argument relies on straightforwardly fallacious statistical reasoning, and we discuss significant implications -- e.g. how carefully fetuses are monitored during labor and delivery, expert (...) testimony in malpractice cases, and public policy decisions. (shrink)
Religious and Spiritual Struggles as Concerns for Health and Well-Being.Nick Stauner,Julie J. Exline &Kenneth I. Pargament -2016 -Horizonte 14 (41):48-75.detailsPeople struggle with religion and spirituality in several ways, including challenges in trusting God, confronting supernatural evil, tolerating other perspectives on religion, maintaining moral propriety, finding existential meaning, and managing religious doubt. These religious and spiritual struggles relate to both physical and mental health independently of other religious and distress factors. Causality in this connection needs further study, but evidence supports many potential causes and moderators of the link between R/S struggle and health. These include personality, social, and environmental influences, (...) including traumatic experiences and subcultural differences. Many theoretical questions remain unresolved, including how change in R/S struggle can predict or be predicted by change in health and other connected constructs, and how one might intervene to aid those who struggle with religious or spiritual challenges. Nonetheless, research momentum has grown, having already produced a wealth of information that underscores the need for greater attention to this domain. R/S struggle poses an important exception to generally positive overall associations between religion and well-being, though even R/S struggle may promote growth. This review offers a brief introduction to emerging psychological theory and research on R/S struggle with an emphasis on its relevance to wellness and illness. (shrink)
The Epistemological Foundations of Artificial Agents.Nick J. Lacey &M. H. Lee -2003 -Minds and Machines 13 (3):339-365.detailsA situated agent is one which operates within an environment. In most cases, the environment in which the agent exists will be more complex than the agent itself. This means that an agent, human or artificial, which wishes to carry out non-trivial operations in its environment must use techniques which allow an unbounded world to be represented within a cognitively bounded agent. We present a brief description of some important theories within the fields of epistemology and metaphysics. We then discuss (...) ways in which philosophical problems of scepticism are related to the problems faced by knowledge representation. We suggest that some of the methods that philosophers have developed to address the problems of epistemology may be relevant to the problems of representing knowledge within artificial agents. (shrink)
Author Reply: Arousal Reappraisal as an Affect Regulation Strategy.Jeremy P. Jamieson,Emily J. Hangen,Hae Yeon Lee &David S. Yeager -2018 -Emotion Review 10 (1):74-76.detailsThe biopsychosocial model of challenge and threat posits that resource and demand appraisals interact in situations of acute stress to determine affective responses, and concomitant physiological responses, motivation, and decisions/behaviors. Regulatory approaches that alter appraisals to regulate challenge and threat affective states have the potential to facilitate coping. This reply clarifies the conceptualization of one such regulatory approach, arousal reappraisal, and suggests avenues for future research. However, it is important to note that arousal reappraisal is not a “silver bullet” for (...) improving stress outcomes, nor should this strategy be expected to positively impact all individuals. More work is needed to better elucidate how psychological and biological stress processes interact to shape health. (shrink)
Education Matters: Global Schooling Gains From the 19th to the 21st Century.Robert J. Barro &Jong-Wha Lee -2015 - Oxford University Press USA.detailsEducation has significant and far-reaching effects not only on individuals, but also on the societies in which they live and to which they contribute. The education level of a population affects how a country supports itself and others and the degree to which it can participate in the global field. While everyone from politicians to policymakers to celebrities has stressed the importance of education, there has not been-until now-a vigorous yet comprehensible examination of data to support what has long been (...) common knowledge: education matters. In Education Matters: Global Gains from the 19th to the 21st Century, renowned economists Robert Barro and Jong-Wha Lee present a revolutionary new data set on education in 146 countries since 1870 and projected through 2040. With case studies from the United States, China, and Korea, Barro and Lee evaluate schooling both quantitatively and qualitatively, and assess the role of education in economic and political development. In this comprehensive study, the authors establish the critical role that education plays - particularly for women and girls - in economic growth, fertility, and democracy. The book also addresses sensitive and controversial topics, such as international disparities in education, and the role of education in modernization and development. Both challenging and enlightening, Education Matters has exciting implications for the future of education and promises to be a ground-breaking work in the fields of economics and educational attainment. Engaging and informative, Education Matters is a compelling read for students, scholars, and anyone with a passion for education. (shrink)
Is present-bias a distinctive psychological kind?Natalja Deng,Batoul Hodroj,Andrew J. Latham,Jordan Lee-Tory &Kristie Miller -forthcoming -Inquiry: An Interdisciplinary Journal of Philosophy.detailsPresent-bias is the preference, all else being equal, for positive events to be located in the present rather than the non-present, and for negative events to be located in the non-present rather than the present. Very little attention has been given to present-bias in the contemporary literature on time biases. This may be because it is often assumed that present-bias is not a distinctive psychological kind; that what explains people’s being present-biased is just what explains them displaying various other time-biases. (...) According to this view, there is no need to investigate present-bias independently of investigating these other biases, since present-bias is really just a manifestation of these other biases. We call this the manifestation thesis. We take up the question of whether the manifestation thesis is true, and argue that it is not. Thus, by failing to investigate present-bias in its own right we are failing fully to understand the spectrum of ways in which people display time biases. In turn, we suggest, this may have implications for the ways we evaluate whether present-bias is rationally permissible. (shrink)
Core Texts, Community, and Culture: Working Together for Liberal Education.Ronald J. Weber,Scott J. Lee,Mary Buzan,Anne Marie Flanagan &Douglas Hadley (eds.) -2009 - Upa.detailsThe Association for Core Texts and Courses asserts its commitment to coming together and speaking about the scientific, the political, and the artistic to live together in an enlightened fashion. ACTC's Tenth Annual Conference re-affirmed and re-examined the value of serious reading and discussion focused through core texts.
Export citation
Bookmark
Capitalizing on Appraisal Processes to Improve Affective Responses to Social Stress.Jeremy P. Jamieson,Emily J. Hangen,Hae Yeon Lee &David S. Yeager -2017 -Emotion Review 10 (1):30-39.detailsRegulating affective responses to acute stress has the potential to improve health, performance, and well-being outcomes. Using the biopsychosocial model of challenge and threat as an organizing framework, we review how appraisals inform affective responses and highlight research that demonstrates how appraisals can be used as regulatory tools. Arousal reappraisal, specifically, instructs individuals on the adaptive benefits of stress arousal so that arousal is conceptualized as a coping resource. By reframing the meaning of signs of arousal that accompany stress, it (...) is possible to break the link between stressful situations, and malignant physiological responses and experiences of negative affect. Applications of arousal reappraisal for academic contexts and clinical science, and directions for future research are discussed. (shrink)
Young Children Selectively Hide the Truth About Sensitive Topics.Gail D. Heyman,Xiao Pan Ding,Genyue Fu,Fen Xu,Brian J. Compton &Kang Lee -2020 -Cognitive Science 44 (3):e12824.detailsStarting in early childhood, children are socialized to be honest. However, they are also expected to avoid telling the truth in sensitive situations if doing so could be seen as inappropriate or impolite. Across two studies (total N = 358), the reasoning of 3‐ to 5‐year‐old children in such a scenario was investigated by manipulating whether the information in question would be helpful to the recipient. The studies used a reverse rouge paradigm, in which a confederate with a highly salient (...) red mark on her nose asked children whether she looked okay prior to having her picture taken. In Study 1, children tended to tell the truth only if they were able to observe that the mark was temporary and the confederate did not know it was there. In Study 2, children tended to tell the truth only if they were able to observe that the mark could be concealed with makeup. These findings show that for children as young as age 3, decisions about whether to tell the truth are influenced by the likelihood that the information would be helpful to the recipient. (shrink)
No categories
Human visual cortical responses to specular and matte motion flows.Tae-Eui Kam,Damien J. Mannion,Seong-Whan Lee,Katja Doerschner &Daniel J. Kersten -2015 -Frontiers in Human Neuroscience 9:151202.detailsDetermining the compositional properties of surfaces in the environment is an important visual capacity. One such property is specular reflectance, which encompasses the range from matte to shiny surfaces. Visual estimation of specular reflectance can be informed by characteristic motion profiles; a surface with a specular reflectance that is difficult to determine while static can be confidently disambiguated when set in motion. Here, we used fMRI to trace the sensitivity of human visual cortex to such motion cues, both with and (...) without photometric cues to specular reflectance. Participants viewed rotating blob-like objects that were rendered as images (photometric) or dots (kinematic) with either matte-consistent or shiny-consistent specular reflectance profiles. We were unable to identify any areas in low and mid-level human visual cortex that responded preferentially to surface specular reflectance from motion. However, univariate and multivariate analyses identified several visual areas; V1, V2, V3, V3A/B, and hMT+, capable of differentiating shiny from matte surface flows. These results indicate that the machinery for extracting kinematic cues is present in human visual cortex, but the areas involved in integrating such information with the photometric cues necessary for surface specular reflectance remain unclear. (shrink)
Sampling Assumptions in Inductive Generalization.Daniel J. Navarro,Matthew J. Dry &Michael D. Lee -2012 -Cognitive Science 36 (2):187-223.detailsInductive generalization, where people go beyond the data provided, is a basic cognitive capability, and it underpins theoretical accounts of learning, categorization, and decision making. To complete the inductive leap needed for generalization, people must make a key ‘‘sampling’’ assumption about how the available data were generated. Previous models have considered two extreme possibilities, known as strong and weak sampling. In strong sampling, data are assumed to have been deliberately generated as positive examples of a concept, whereas in weak sampling, (...) data are assumed to have been generated without any restrictions. We develop a more general account of sampling that allows for an intermediate mixture of these two extremes, and we test its usefulness. In two experiments, we show that most people complete simple one-dimensional generalization tasks in a way that is consistent with their believing in some mixture of strong and weak sampling, but that there are large individual differences in the relative emphasis different people give to each type of sampling. We also show experimentally that the relative emphasis of the mixture is influenced by the structure of the available information. We discuss the psychological meaning of mixing strong and weak sampling, and possible extensions of our modeling approach to richer problems of inductive generalization. (shrink)
No categories
Solving the conundrum of intra‐specific variation in metabolic rate: A multidisciplinary conceptual and methodological toolkit.Neil B. Metcalfe,Jakob Bellman,Pierre Bize,Pierre U. Blier,Amélie Crespel,Neal J. Dawson,Ruth E. Dunn,Lewis G. Halsey,Wendy R. Hood,Mark Hopkins,Shaun S. Killen,Darryl McLennan,Lauren E. Nadler,Julie J. H. Nati,Matthew J. Noakes,Tommy Norin,Susan E. Ozanne,Malcolm Peaker,Amanda K. Pettersen,Anna Przybylska-Piech,Alann Rathery,Charlotte Récapet,Enrique Rodríguez,Karine Salin,Antoine Stier,Elisa Thoral,Klaas R. Westerterp,Margriet S. Westerterp-Plantenga,Michał S. Wojciechowski &Pat Monaghan -2023 -Bioessays 45 (6):2300026.detailsResearchers from diverse disciplines, including organismal and cellular physiology, sports science, human nutrition, evolution and ecology, have sought to understand the causes and consequences of the surprising variation in metabolic rate found among and within individual animals of the same species. Research in this area has been hampered by differences in approach, terminology and methodology, and the context in which measurements are made. Recent advances provide important opportunities to identify and address the key questions in the field. By bringing together (...) researchers from different areas of biology and biomedicine, we describe and evaluate these developments and the insights they could yield, highlighting the need for more standardisation across disciplines. We conclude with a list of important questions that can now be addressed by developing a common conceptual and methodological toolkit for studies on metabolic variation in animals. (shrink)
New Prospects for Organizational Democracy? How the Joint Pursuit of Social and Financial Goals Challenges Traditional Organizational Designs.Julie Battilana,Michael Fuerstein &Michael Y. Lee -2018 - In Subramanian Rangan,Capitalism Beyond Mutuality?: Perspectives Integrating Philosophy and Social Science. Oxford, United Kingdom: Oxford University Press. pp. 256-288.detailsSome interesting exceptions notwithstanding, the traditional logic of economic efficiency has long favored hierarchical forms of organization and disfavored democracy in business. What does the balance of arguments look like, however, when values besides efficient revenue production are brought into the picture? The question is not hypothetical: In recent years, an ever increasing number of corporations have developed and adopted socially responsible behaviors, thereby hybridizing aspects of corporate businesses and social organizations. We argue that the joint pursuit of financial and (...) social objectives warrants significant rethinking of organizational democracy’s merits compared both to hierarchy and to non-democratic alternatives to hierarchy. In making this argument, we draw on an extensive literature review to document the relative lack of substantive discussion of organizational democracy since 1960. And we draw lessons from political theory, suggesting that the success of political democracy in integrating diverse values offers some grounds for asserting parallel virtues in the business case. (shrink)
We Shall. Photographs by Paul D'amato.Paul D'Amato,Gregory J. Harris &Cleophus J. Lee -2013 - Depaul Art Museum.detailsThrough emotionally charged portraits and richly layered interior views, the photographs of Chicago-based artist Paul D Amato provide a genuine and complex perspective on life in some of the most challenging and troubled neighborhoods in the nation. This publication is supported in part by grants from the David C. and Sarajean Ruttenberg Arts Foundation and the Robert Mapplethorpe Foundation.".
Professional Lives, Personal Struggles: Ethics and Advocacy in Research on Homelessness.Julie Adkins,Kathleen Arnold,Kurt Borchard,David Cook,Jeff Ferrell,Vincent Lyon-Callo,Jürgen von Mahs,Don Mitchell,Rob Rosenthal,Michael Rowe,Lynn A. Staeheli &J. Talmadge Wright (eds.) -2012 - Lexington Books.detailsThis is the first book published that specifically examines questions of ethics and advocacy that arise in conducting research on homelessness, exploring the issues through the deeply personal experiences of some of the field’s leading scholars. By examining the central queries from a broad range of perspectives, the authors presented here draw upon years of rich investigations to generate a framework that will be instructive for researchers across a wide spectrum of areas of inquiry.
How Leaders at High-Performing Healthcare Organizations Think About Organizational Professionalism.Julie L. Agris,Sherril Gelmon,Matthew K. Wynia,Blair Buder,Krista J. Emma,Ahmed Alasmar &Richard Frankel -2024 -Journal of Law, Medicine and Ethics 52 (4):922-935.detailsThis pilot study is the first formal exploration of the concept of “Organizational Professionalism” (OP) among health system leaders in high-performing healthcare organizations. Semi-structured key informant interviews with 23 leaders from 8 healthcare organizations that were recipients of the Malcolm Baldrige National Quality Award (MBNQA) or Baldrige-based state quality award programs explored conceptualization, operationalization, and measurement of OP. Further exploration and understanding of OP in healthcare organizations has the potential to establish and sustain professional and ethical organizational cultures that bolster (...) trust through the sound implementation of laws, policies, and procedures to support the delivery of high-quality patient care. (shrink)
Protecting Privacy While Optimizing the Use of (Health)Data: The Importance of Measures and Safeguards.Julie-Anne R. Smit,Menno Mostert &Johannes J. M. van Delden -2022 -American Journal of Bioethics 22 (7):79-81.detailsThe possibilities for collecting, storing, and processing of data have increased significantly over the last decades. It has been argued that an increasing demand for health data will de...