I Miss Being Me: Phenomenological Effects of Deep Brain Stimulation.Frederic Gilbert,Eliza Goddard,John Noel M. Viaña,Adrian Carter &Malcolm Horne -2017 -American Journal of Bioethics Neuroscience 8 (2):96-109.detailsThe phenomenological effects of deep brain stimulation (DBS) on the self of the patient remains poorly understood and under described in the literature, despite growing evidence that a significant number of patients experience postoperative neuropsychiatric changes. To address this lack of phenomenological evidence, we conducted in-depth, semistructured interviews with 17 patients with Parkinson's disease who had undergone DBS. Exploring the subjective character specific to patients' experience of being implanted gives empirical and conceptual understanding of the potential phenomenon of DBS-induced self-estrangement. (...) Our study concluded that (1) the more patients preoperatively felt alienated by their illness, the more they experienced postoperative self-estrangement, and (2) the notion of self-estrangement seems to exist in association with certain common qualitative characters, namely, loss of control, which reflects a deteriorative estrangement, and distorted perception of capacities, which reveals a restorative estrangement. These findings indicate that subjective self-reports help us to understand some aspects of the potential phenomenon of DBS-induced self-estrangement. (shrink)
Interrogating Sites of Knowledge Production: The Role of Journals, Institutions, and Professional Societies in Advancing Epistemic Justice in Bioethics.John Noel Montaño Viaña -2024 -American Journal of Bioethics 24 (4):63-66.detailsJecker et al. (2024) propose seven ethical principles to guide international bioethics conferencing, applying them to the selection of Qatar as the location for the 2024 World Congress of Bioethics...
“All from us” or “All with us”: Addressing Precision Medicine Inequities Requires Inclusion of Intersectionally Minoritized Populations as Partners and Project Leaders.John Noel Montaño Viaña -2024 -American Journal of Bioethics 24 (3):111-114.detailsGalasso (2024) reiterates the problem of medical research being grounded on data from people with European ancestry and subsequently describes efforts made by the All of Us Research Program in the...
Beyond Cognition: Psychological and Social Transformations in People Living with Dementia and Relevance for Decision-Making Capacity and Opportunity.John Noel Viaña,Fran McInerney &Henry Brodaty -2020 -American Journal of Bioethics 20 (8):101-104.detailsWalsh (2020) underscores how dementia leads to a cognitive transformative experience, which can result in a change in preferences, values, and beliefs. This transformation supports placing greater...
Responsible Innovation For and From Ethical Integration.John Noel Viaña,Sujatha Raman &Joan Leach -2020 -American Journal of Bioethics 20 (4):94-97.detailsVolume 20, Issue 4, May 2020, Page 94-97.
From Paternalism to Engagement: Bioethics Needs a Paradigm Shift to Address Racial Injustice During COVID-19.John Noel Viaña,Sujatha Raman &Marcus Barber -2021 -American Journal of Bioethics 21 (2):96-98.detailsCOVID-19 has disproportionately affected ethnic minorities and migrants, not only through an increased risk of infection and death (Pan et al. 2020), but also through experiences of harassment, mar...
Of Meatballs And Invasive Neurotechnological Trials: Additional Considerations for Complex Clinical Decisions.John Noel M. Viaña,Adrian Carter &Frederic Gilbert -2018 -American Journal of Bioethics Neuroscience 9 (2):100-104.detailsUsing this case, Lavazza and Reichlin (2018) explored the ethical dilemmas associated with decision making in people with Alzheimer’s disease (AD), specifically when their new preferences conflict...
Enthusiastic portrayal of 3D bioprinting in the media: Ethical side effects.Frederic Gilbert,John Noel M. Viaña,Cathal D. O'Connell &Susan Dodds -2017 -Bioethics 32 (2):94-102.detailsThere has been a surge in mass media reports extolling the potential for using three-dimensional printing of biomaterials to treat a wide range of clinical conditions. Given that mass media is recognized as one of the most important sources of health and medical information for the general public, especially prospective patients, we report and discuss the ethical consequences of coverage of 3D bioprinting in the media. First, we illustrate how positive mass media narratives of a similar biofabricated technology, namely the (...) Macchiarini scaffold tracheas, which was involved in lethal experimental human trials, influenced potential patient perceptions. Second, we report and analyze the positively biased and enthusiastic portrayal of 3D bioprinting in mass media. Third, we examine the lack of regulation and absence of discussion about risks associated with bioprinting technology. Fourth, we explore how media misunderstanding is dangerously misleading the narrative about the technology. (shrink)
Reexamining Adaptive Deep Brain Stimulation Trial Conclusions: Revisiting Ethical and Clinical Risks in Earlier DBS Studies for Dementia Treatment.Frederic Gilbert,John Noel Viana,Christine Stirling,James Vickers &Alexander R. Harris -2025 -American Journal of Bioethics Neuroscience 16 (2):85-87.detailsThe transition from pharmaceuticals to invasive neurotechnological interventions, such as deep brain stimulation (DBS), marks a significant shift in dementia research focus and investigation for po...
Considering People with Dementia and Their Caregivers in Covid‐19 Lockdowns.John Noel Viaña -2021 -Hastings Center Report 51 (6):11-12.detailsRecent outbreaks in Australia and the detection of more virulent SARS‐CoV‐2 strains suggest that Covid‐19 is not yet over. In July 2021, three states in Australia were in lockdown as a result of community transmission of the Delta variant. Despite being effective at mitigating outbreaks, lockdowns could have adverse effects on the elderly and people with dementia. This commentary reviews general lockdown and aged‐care lockdown policies in Victoria, New South Wales, and South Australia and highlights how these could affect the (...) well‐being of people with dementia and their caregivers. Drawing from literature on Covid‐19 and dementia, this commentary provides pragmatic recommendations on how to consider the well‐being of people with dementia and their care providers in Covid‐19 management policies. (shrink)