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Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories
Sara L. Ackerman
&
Barbara A. Koenig
AJOB Empirical Bioethics
9 (1):48-57 (
2018
)
@article{Ackerman2018-ACKUVI,author = {Sara L. Ackerman and Barbara A. Koenig},doi = {10.1080/23294515.2017.1405095},journal = {AJOB Empirical Bioethics},number = {1},pages = {48--57},title = {Understanding Variations in Secondary Findings Reporting Practices Across U.S. Genome Sequencing Laboratories},volume = {9},year = {2018}}
Ackerman, Sara L. & Koenig, Barbara A. (2018). Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories. AJOB Empirical Bioethics 9 (1):48-57.
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Citations of this work
Differences in Conceptual Understanding of the “Actionability” of Incidental Findings and the Resultant Difference in Ethical Responsibility: An Empirical Study in Japan.
Tomohide Ibuki
,
Keiichiro Yamamoto
&
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-
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-
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11 (3):187-194.
Add more citations
References found in this work
Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings?
Catherine Gliwa
&
Benjamin E. Berkman
-
2013
-
American Journal of Bioethics
13 (2):32-42.
The Challenge of Informed Consent and Return of Results in Translational Genomics: Empirical Analysis and Recommendations.
Gail E. Henderson
,
Susan M. Wolf
,
Kristine J. Kuczynski
,
Steven Joffe
,
Richard R. Sharp
,
D. Williams Parsons
,
Bartha M. Knoppers
,
Joon-Ho Yu
&
Paul S. Appelbaum
-
2014
-
Journal of Law, Medicine and Ethics
42 (3):344-355.
When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing.
Leila Jamal
,
Jill O. Robinson
,
Kurt D. Christensen
,
Jennifer Blumenthal-Barby
,
Melody J. Slashinski
,
Denise Lautenbach Perry
,
Jason L. Vassy
,
Julia Wycliff
,
Robert C. Green
&
Amy L. McGuire
-
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-
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