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Center for Genetics and Society

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US non-profit organization
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TheCenter for Genetics and Society (CGS) is anon-profit information and public affairs organization based inBerkeley, California, United States. It encourages the responsible use and regulation of new humangenetic andreproductive technologies. CGS provides analysis andeducational materials and organizesconferences, workshops, and briefings. This organization tends to particularly criticize proposals concerning reproductivehuman cloning andgermlinegenetic modification—both uses of technology colloquially considered 'socially irresponsible.'

CGS is apolitically progressive andpro-choice organization. Its key areas of concern include:genetic modification of humans,stem cell research,DNA forensics,preimplantation genetic diagnosis, commercial and cross-bordersurrogacy,race and genetics,race-based medicines,egg retrieval,designer babies,human cloning, socialsex selection, genetics anddisability rights, direct-to-consumergenetic testing, human applications ofsynthetic biology, and the legacy of theU.S. eugenics movement.

The executive director of CGS isMarcy Darnovsky. The organization's advisory board includesFrancine Coeytaux,Dorothy Roberts,Kavita Ramdas, Milton Reynolds, andAlexandra Stern.[1] As of March 2023, CGS's current research fellows areOsagie Obasogie (Senior Fellow), Lisa Ikemoto,[2] Gina Maranto,[3] and Brendan Parent.[4] Previously, Diane Beeson[5] was aresearch fellow.

History

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The Center for Genetics and Society was founded in October 2001 under the leadership ofRichard A. Hayes, Ph.D., to advocate for social oversight and control of new human biotechnologies.[6] It drew from and continues to promote discussions and collaborations with key leaders inscience,medicine,women's health,racial justice,disability rights,environmental justice, andhuman rights. A primary focus of the organization has been to alert civil society constituencies to the challenges posed by new human genetic technologies and assist them in discussions and debates about appropriate regulation.[7]

CGS organizes and presents at key conferences and symposiums on national and international biopolitical issues; conducts briefings for interest groups and elected officials; engages in selected policy interventions; and has a media presence that includes publications, a blog, and social media.

In 2005, CGS received a "Local Heroes" award from theSan Francisco Bay Guardian.[8] In 2006, current Executive Director Marcy Darnovsky was named one of five "women inbioethics making a difference" by the Women's Bioethics Project.[9]

Policy interventions

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Part ofa series on
Progressivism
  • CGS has engaged with the U.S. Food and Drug Administration and the U.K. Department of Health and Human Fertilisation and Embryology Authority over proposals for human trials of a procedure that would produce inheritable genetic modifications, so-called "three-personIVF".[10]
  • CGS filed several amicus briefs in the lawsuit against Myriad Genetics concerning itsbreast-cancer gene patents. In June 2013, the Supreme Court ruled unanimously thatnaturally occurring human genes cannot be patented.
  • CGS supported the 2006 bill SB 1260, which ensures that women in California who provide eggs for private research are accorded all established federal and state protections forhuman research subjects and limits reimbursement to their direct expenses.[11]
    • It helped defeat the 2013 bill AB 926, which would have removed these provisions.
  • CGS led in holding California's$3 billion stem cell research agency accountable to the state's legislature and the public. It submitted invited testimony to the "Little Hoover" Commission on California State Government Organization and Economy in 2008 and to the Institute of Medicine Committee in 2012, focusing on the conflicts of interest built into the agency's governing board.[12]
  • CGS was involved in the early stages of the 2000–2005United Nations effort to propose an international treaty prohibiting human reproductive cloning.
  • Funding

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    CGS is a project of theTides Center, a501(c)(3) organization funded by individual contributions and philanthropic foundations.[13] CGS receives support from private donors and foundations and trusts, including the Appleton Foundation; Lyman B. Brainerd, Jr. Family Foundation, and theJohn D. and Catherine T. MacArthur Foundation.[14]

    See also

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    References

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    1. ^"Advisory Board".Center for Genetics and Society. Retrieved2023-03-10.
    2. ^"Lisa Ikemoto | School of Law". 2 September 2021.
    3. ^"Professor Gina Maranto | the Leonard and Jayne Abess Center for Ecosystem Science and Policy at the University of Miami". Archived fromthe original on 2015-10-06.
    4. ^"Brendan Parent".med.nyu.edu. Retrieved2023-03-10.
    5. ^"Diane Beeson: ISS.nl". Archived fromthe original on 2015-05-14.
    6. ^"CGS : History of the Center for Genetics and Society".www.geneticsandsociety.org. Retrieved2015-10-06.
    7. ^"CGS: Overview".www.geneticsandsociety.org. Archived fromthe original on 2015-10-06. Retrieved2015-10-06.
    8. ^"Congratulations to the Center for Genetics and Society". Archived fromthe original on 2015-10-07. Retrieved2015-10-06.
    9. ^"WBP - Making a Difference, January 2006".www.womensbioethics.org. Archived fromthe original on 2006-02-05. Retrieved2015-10-06.
    10. ^"Sign-on letter to FDA"(PDF).www.geneticsandsociety.org. February 18, 2014. Archived fromthe original(PDF) on 2014-05-29. Retrieved2025-06-07.
    11. ^"CGS : SB 1260 (Standards for Egg Retrieval for Stem Cell Research) Fact Sheet".
    12. ^"CGS: Submitted testimony concerning the California stem cell research program".www.geneticsandsociety.org. Archived fromthe original on 2016-11-27. Retrieved2025-06-07.
    13. ^"Project Directory". Retrieved2015-10-05.
    14. ^"CGS : Our Funders".www.geneticsandsociety.org. Retrieved2015-10-05.

    External links

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