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From Narratives to Numbers: Data Work and Patient-Generated Health Data in Consultations
Authors
Tomas Lindroth, Anna Sigridur Islind, Gunnar Steineck, Johan Lundin
Pages
491 - 495
DOI
10.3233/978-1-61499-852-5-491
SeriesEbook
Abstract

This article presents preliminary findings on how the introduction of patient-generated health data (PGHD) triggers changes during patient-nurse consultations. This article builds on a two-year case study, examining the work practice at a cancer rehabilitation clinic at a Swedish Hospital using PGHD. The study focuses on how nurses' use data, gathered by patients with a mobile phone app, during consultations. The use of PGHD introduce a change in the translation work, the work of turning rich patient descriptions and transform them into data, during the consultation for documentation and clinical decision-making. This change affects precision, questions asked and the use of visualizations as well as the patient-nurse decision making.

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